Thread:Bookworm200/@comment-26903666-20160803210359/@comment-26190381-20160804002815

Oh dear Ruth. What a terrible illness and I can understand why you're reluctant to talk about it. There are 'centres of excellence ' in the UK mainly in London and Nottingham but there still appears to be general misdiagnosis and ignorance amongst some local doctors who persist in treating it as a weight problem. Treatment seems to be more focused on nurse led clinics (compression, lifestyle changes (!)due to the costs of liposuction/drainage but at least whatever treatment you get is free under our National Health Scheme. If you had close relatives in UK and you lived here on a long term visa, there's a chance you would get treated as we get lots of health tourists, but as the proper treatment is a long term process, that wouldn't work. In any case you need your husband to perform a basic caring role. I have seen people with this condition but not known what it caused it. All I can say is that if it helps to talk, I'm here. I was a Samaritan for many years and was trained to counsel over the phone and I would like to think I made a difference. I believe it can be quite cathartic to talk, especially to someone you're never going to meet. Meantime keep smiling. You sound like a lovely positive person. Xxxx